What if the patience required is with doctors regarding your child? What then? I have little patience. The closest thing I came to patience when I was younger was liking the Guns n Roses song. I’m not sure who I learned this from growing up…. but in our relationship I’m constantly being told by Bo to “c’mon, Elo… please be patient.” How does one learn it? I’m all ears.
I bring this up as I transition into this new role of Landon’s advocate. Of course all mother’s are their child’s advocates, but when you child is sick or has any difficulties resulting in doctor’s or specialist’s offices…it takes on a grander meaning. You have to follow up, check and re-check with schedulers, email and call everyone back and then harass them for results. The harassing is what today is all about.
I’ve been following the Dalai Lama on Facebook (yes I realize how strange that phrase is) and his wisdom provides great clarity on a regular basis. Here are his thoughts on patience:
Maybe I should write his mantras on my mirror in lipstick like those women on self-discovery journeys in movies. For me – patience seems to be about remembering to breathe. Breathing deeply allows me to center myself and therefore leave calm voicemails and craft pointed yet nice emails. Another key is faith. Faith in the people that are helping us, faith in myself that I’m strong enough to wait for an answer, and faith in God that he’s watching over us.
Hi! I am a brand new mom of a little BOY named Landon who also has Treacher Collins! LJ was born on 9/21/16. I am SO glad that I stumbled upon this blog as our stoties are so very similar that it gives me chills. I would love to connect with you!
Ashley Gavio
Ashley.Gavio912@yahoo.com
Comments will be approved before showing up.
Babies4Babies
July 13, 2017
Ashley — a belated congratulations on the birth of your little boy, Landon. I am so happy that Eloise’s story has resonated with you and I want to make sure you know where to find her so you can connect directly. If you haven’t already, check out https://theeloisediaries.com/ where she shares her stories of motherhood with beautiful, raw honesty. I’ll write you an email as well so please write me directly if I can be more helpful. xo